Thank a teacher with an honor donation... working together to improve opportunities for people with Down syndrome

The research we fund focuses on improving cognition - learning, memory and speech - for people with Down syndrome. We know there are a lot of devoted teachers who are dedicated to doing the same. Thanks to an idea from a valued supporter, we'd like to help you thank and recognize the amazing teachers who make a difference in the life of your loved one with Down syndrome. Learn more.

Here's to Collaboration!

Thank you to Jeremie Ballinger, Executive Director of the Down Syndrome Association of Greater St. Louis, who took some time from the activities at DSAIA to talk about the merger of LuMind Foundation and Research Down Syndrome. We appreciate the time Jeremie took to "welcome collaboration," especially as the DSAGSL was busy collecting numerous awards at the conference. We're so glad to have your support, DSAGSL!

Thank you for supporting us on WDSD 2015!

So many of you took advantage of the generous 3:1 match on donations - THANK YOU! We loved seeing all the activity on social media - thank you to everyone who posted, blogged, tweeted or otherwise help to spread the word about the importance of cognition research. 

LuMind Foundation and Research Down Syndrome Have Merged to Create One Organization: LuMind Research Down Syndrome Foundation

LogoThe LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome (RDS), worldwide leaders in advancing Down syndrome cognition research, together announce consolidation of the two organizations. The new foundation will pursue their shared mission more effectively and efficiently, and leverage the tremendous progress each has made to ignite Down syndrome cognition discoveries. Read more in our press release. 

Karen Gaffney on the Importance of Research

Vibrant and inspirational self-advocate Karen Gaffney spoke at the October 2014 Funding Futures to benefit the LuMind Foundation. Karen spoke about the importance of Down syndrome cognition research and "the huge black cloud" that hangs over her about early onset Alzheimer's disease and loss of cognitive gains that every person with Down syndrome faces as they age.

We Have Big Plans for 2015!

Won't you join us? Ten years ago there was little research on Down syndrome cognitive development being conducted, now there are more promising lines of discovery than we can fund. The LuMind Foundation Board Chair, Ryan Hartman, has a message about why NOW is a critical time to capture the research momentum you've ignited with your donations. Read Ryan's words on our Plus15 Blog.

NIHNIH Releases 2014 Down Syndrome Research Plan

We’re very pleased to announce that NIH has just released the updated document “Down Syndrome Directions,” the NIH Research Plan on Down Syndrome. The research plan will provide another great way to work with the DS community to further research efforts. Read more about the plan on our plus15 Blog.

The ROMP Video is Here!

What happens at a ROMP FOR RESEARCH? Find out in this colorful, fun-filled, camera-drone flying video. We especially enjoyed the cameo by Troy, one of our favorite ROMP participants.

 

You Moved the Needle!

You pushed the needle on research! We reached our goal of 2390 and doubled our $100/person donation, by adding at least 125 names to the DS-Connect® registry. In the end, 226 people joined DS-Connect® during the month of October, earning LuMind Foundation $45,200 for research. Better yet - the registry tipped 2500 just after the month closed. Keep watch on the DS-Connect® website to see the gauge move even more.

Thank you to everyone who helped by joining the registry and spreading the word. Read our deepest thanks on our plus15 blog post "DS-Connect® Challenge a Huge Success."

For details on the Challenge, read a description on our website or visit the registry to sign up today at DS-Connect®.

Keep the needle moving!

Your Donations at Work: The 2014-2015 LuMind Research Grants are Announced

We've worked together all year for this moment! The Research grants are here!

Thank you to all of our wonderful supporters who made advances in Down syndrome research a reality. Thank you to the members of our Scientific Advisory Board for reviewing all the proposals and making those tough decisions. 

Read more about the areas of research and the wonderful opportunities the programs hold for people of all ages with Down syndrome. Learn more by visiting our Research hub, reading the full press release, or browse a graphic outlining how the results from our funded researchers are flowing through the research pipeline. Great progress - all thanks to you!

About Our Name

Logo

We're lighting up the future with a new name, new friends, and exciting progress.

Read More About Our New Name

 

Read Our Press Release

 

Upcoming Events

Summer 2015

100 Hole Hike, Your Local Golf Course

Are you a golf warrior? Do you think you can play 100 holes of golf in one day to support Down syndrome research? Join Alan Gard and other golf warriors across the nation in the Hundred Hole Hike Challenge. Learn more and join up today!

June 18, 2015

Research Presentation: Miami Valley Down Syndrome Association

LuMind Research Down Syndrome's Dr. Robert Schoen will be presenting a research update sponsored by the Miami Valley Down Syndrome Association in Dayton, OH on June 18, 2015 at 6:30pm at the Job Center Cafeteria, 1133 S. Edwin C. Moses Blvd. Dayton, OH 45417. RSVP by June 16th to office@mvdsa.org or 937-222-0744.

June 23, 2015

Hayes Mechanical Golf Outing, Chicago, Illinois

We're back for the 8th annual Hayes Mechanical Chicago Golf Outing to benefit the LuMind RDS Foundation. To learn more, please contact Isabel Sultanian

June 24, 2015

Research Presentation, New York City

You're invited to join us in the big apple to learn about our exciting plans for research. Learn more and register on our event page.

June 25-28, 2015

NDSC Conference, Phoenix, AZ

Dr. Harpold will be presenting the latest on Down syndrome cognition research at the annual convention held by the National Down Syndrome Congress. We'll have an exhibit table - stop by and say hello!

July 6-8, 2015

Second Annual Race for Research, North and South Carolina

Join us as we weave our way through NASCAR history during the second annual Race for Resaerch. We're happy to have NASCAR Driver David Ragan and his wife Jacquelyn back as our honorary co-chairs. Start a team - actual or virtual or make a donation in support of a team or participant. Learn more on the event website. 

July 25-26, 2015

24 Hour Relay for Research, New Jersey

What can be done in 24 hours to ignite Down syndrome research? Join a 24-hour relay and raise funds for this cause! Learn more, sign up for a leg of the relay, or make a donation.

August 10, 2015

Hayes Mechanical Golf Outing, Omaha, NE

The second annual Omaha, Nebraska golf outing to support cognition research is back! Learn more and register at the event site.

August 20, 2015

Hayes Mechanical Golf Tournament, Michigan

The second annual Hayes Mechanical golf event is being held in the heart of Michigan's Great Lakes Bay Region at Apple Mountain Golf Freeland, MI. For more information, please contact Jim Zwick at jzwick@hayesmechanical.com.

September 16, 2015

Hayes PMC Golf Outing, Belleville, Illinois

Join the wonderful folks of Hayes PMC at the Far Oaks Golf Club for a beautiful day of golf to support Down syndrome cognition research. Learn more or register on the event page.

September 24, 2015

Research Presentation, DSACT

We're delighted to be presenting a presentation with support of the Down Syndrome Association of Central Texas on Thursday, September 24th on the Current State of Down Syndrome Cognitive Research. There will be a reception from 6pm-7pm followed by the presentation from 7pm-9pm in the Norman Hackerman Building on the UT campus (100 E. 24th St, Austin 78712). Presentations will be given by Michael Harpold, PhD, Chief Scientific Officer of the LuMind RDS and Jon Pierce-Shimomura, PhD, Assistant Professor, Department of Neuroscience and Fellow, Waggoner Center for Alcohol and Addiction Research. Please see the DSACT website for more details.

View past events >>

 

In the News

LuMind Foundation and Research Down Syndrome Merge

March 2, 2015

LuMind Foundation Announces 2014-2015 Research Grants

September 10, 2014

National Public Radio Features LuMind-Funded Researchers

NPR, August 25, 2014

Health Beat: Down Syndrome: The Key to Alzheimer's disease?

WFMZ, San Diego - July 18, 2014

"Support Cells" in Brain Play Important Role in Down Syndrome

BioScience Technology - July 18, 2014

In Science of Down Syndrome, Another Piece of the Puzzle

Modern Messy - May 20, 2014

Research News Could Lead to New Lines of Investigation

April 2014

Shoddy Sorting Disrupts Memory-Making Signals

AStar Research - April 23, 2014

Can Down Syndrome Research Also Help Alzheimer's Patients?

Cape Cod Times — March 21, 2014

People With Intellectual Disabilities Get a Say in Drug Trials

Wall Street Journal – March 10, 2014

IQ Boosting Drugs Aim to Help Kids with Down Syndrome Learn

Bloomberg News – March 3, 2014

New Drugs May Transform Down Syndrome

Scientific American – March 1, 2014

LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177
LuMind@LuMindFoundation.org

LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177
LuMind@LuMindFoundation.org

© 2015 LuMind Foundation. All Rights Reserved.