Dr. Michael Harpold talks Down Syndrome Research on Arizona PBS

Dr. Michael Harpold, LuMind RDS's chief scientific officer, appeared on Horizonte, a news and affairs program on Channel 8, a public television station in Arizona to talk about Down syndrome research. Enjoy the update from Dr. Harpold at 17 minutes.

Here's to Collaboration!

Thank you to Jeremie Ballinger, Executive Director of the Down Syndrome Association of Greater St. Louis, who took some time from the activities at DSAIA to talk about the merger of LuMind Foundation and Research Down Syndrome. We appreciate the time Jeremie took to "welcome collaboration," especially as the DSAGSL was busy collecting numerous awards at the conference. We're so glad to have your support, DSAGSL!

LuMind Foundation and Research Down Syndrome Have Merged to Create One Organization: LuMind Research Down Syndrome Foundation

LogoThe LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome (RDS), worldwide leaders in advancing Down syndrome cognition research, together announce consolidation of the two organizations. The new foundation will pursue their shared mission more effectively and efficiently, and leverage the tremendous progress each has made to ignite Down syndrome cognition discoveries. Read more in our press release. 

Karen Gaffney on the Importance of Research

Vibrant and inspirational self-advocate Karen Gaffney spoke at the October 2014 Funding Futures to benefit the LuMind Foundation. Karen spoke about the importance of Down syndrome cognition research and "the huge black cloud" that hangs over her about early onset Alzheimer's disease and loss of cognitive gains that every person with Down syndrome faces as they age.

We Have Big Plans for 2015!

Won't you join us? Ten years ago there was little research on Down syndrome cognitive development being conducted, now there are more promising lines of discovery than we can fund. The LuMind Foundation Board Chair, Ryan Hartman, has a message about why NOW is a critical time to capture the research momentum you've ignited with your donations. Read Ryan's words on our Plus15 Blog.

NIHNIH Releases 2014 Down Syndrome Research Plan

We’re very pleased to announce that NIH has just released the updated document “Down Syndrome Directions,” the NIH Research Plan on Down Syndrome. The research plan will provide another great way to work with the DS community to further research efforts. Read more about the plan on our plus15 Blog.

The ROMP Video is Here!

What happens at a ROMP FOR RESEARCH? Find out in this colorful, fun-filled, camera-drone flying video. We especially enjoyed the cameo by Troy, one of our favorite ROMP participants.


You Moved the Needle!

You pushed the needle on research! We reached our goal of 2390 and doubled our $100/person donation, by adding at least 125 names to the DS-Connect® registry. In the end, 226 people joined DS-Connect® during the month of October, earning LuMind Foundation $45,200 for research. Better yet - the registry tipped 2500 just after the month closed. Keep watch on the DS-Connect® website to see the gauge move even more.

Thank you to everyone who helped by joining the registry and spreading the word. Read our deepest thanks on our plus15 blog post "DS-Connect® Challenge a Huge Success."

For details on the Challenge, read a description on our website or visit the registry to sign up today at DS-Connect®.

Keep the needle moving!


About Our Name


We're lighting up the future with a new name, new friends, and exciting progress.

Read More About Our New Name


Read Our Press Release


Upcoming Events

Summer 2015

100 Hole Hike, Your Local Golf Course

Are you a golf warrior? Do you think you can play 100 holes of golf in one day to support Down syndrome research? Join Alan Gard and other golf warriors across the nation in the Hundred Hole Hike Challenge. Learn more and join up today!

August 10, 2015

Hayes Mechanical Golf Outing, Omaha, NE

The second annual Omaha, Nebraska golf outing to support cognition research is back! Learn more and register at the event site.

August 20, 2015

Hayes Mechanical Golf Tournament, Michigan

The second annual Hayes Mechanical golf event is being held in the heart of Michigan's Great Lakes Bay Region at Apple Mountain Golf Freeland, MI. For more information, please contact Jim Zwick at jzwick@hayesmechanical.com.

September 16, 2015

Hayes PMC Golf Outing, Belleville, Illinois

Join the wonderful folks of Hayes PMC at the Far Oaks Golf Club for a beautiful day of golf to support Down syndrome cognition research. Learn more or register on the event page.

September 24, 2015

Research Presentation, DSACT

We're delighted to be presenting a presentation with support of the Down Syndrome Association of Central Texas on Thursday, September 24th on the Current State of Down Syndrome Cognitive Research. There will be a reception from 6pm-7pm followed by the presentation from 7pm-9pm in the Norman Hackerman Building on the UT campus (100 E. 24th St, Austin 78712). Presentations will be given by Michael Harpold, PhD, Chief Scientific Officer of the LuMind RDS and Jon Pierce-Shimomura, PhD, Assistant Professor, Department of Neuroscience and Fellow, Waggoner Center for Alcohol and Addiction Research. Please see the DSACT website for more details.

October 11, 2015

ROMP for Research - 10th Anniversary

The ROMP is back, New York! One of LuMind RDS's signature events is back with ten years of fun packed into one day. Click here to learn more - and SIGN UP YOUR ROMP TEAM TODAY!

October 16, 2015

Ashley Rose Golf Tournament

The 5th Annual Ashley Rose Classic is back in Virginia! We've enjoyed celebrating the beautiful Ashley Rose as she's grown over the past 5 years. So join in the celebration and play golf to benefit LuMind Research Down Syndrome Foundation and cognition research! Learn more, register or make a donation.

View past events >>


In the News

LuMind Foundation and Research Down Syndrome Merge

March 2, 2015

LuMind Foundation Announces 2014-2015 Research Grants

September 10, 2014

National Public Radio Features LuMind-Funded Researchers

NPR, August 25, 2014

Health Beat: Down Syndrome: The Key to Alzheimer's disease?

WFMZ, San Diego - July 18, 2014

"Support Cells" in Brain Play Important Role in Down Syndrome

BioScience Technology - July 18, 2014

In Science of Down Syndrome, Another Piece of the Puzzle

Modern Messy - May 20, 2014

Research News Could Lead to New Lines of Investigation

April 2014

Shoddy Sorting Disrupts Memory-Making Signals

AStar Research - April 23, 2014

Can Down Syndrome Research Also Help Alzheimer's Patients?

Cape Cod Times — March 21, 2014

People With Intellectual Disabilities Get a Say in Drug Trials

Wall Street Journal – March 10, 2014

IQ Boosting Drugs Aim to Help Kids with Down Syndrome Learn

Bloomberg News – March 3, 2014

New Drugs May Transform Down Syndrome

Scientific American – March 1, 2014

LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

© 2015 LuMind Foundation. All Rights Reserved.