Research Update: What's New in Cognition Research at Johns Hopkins?
Join us on October 21 at 2:00 ET for a research update from Dr. Roger Reeves and Dr. Paul Worley from Johns Hopkins University who will educate and update us on the three projects they are working on related to improving Down syndrome cognition. If you want a preview of what will be covered, you can learn more about the 2015-2016 projects we've just funded for these brilliant researchers on our grants announcement page.
Register today for the webinar. If you can't make it, register anyway and we will send you the link to the recorded session.
And if you missed the webinar announcing the 2015-2016 grants, you can listen to a download of the webinar here.
Dr. Michael Harpold talks Down Syndrome Research on Arizona PBS
Dr. Michael Harpold, LuMind RDS's chief scientific officer, appeared on Horizonte, a news and affairs program on Channel 8, a public television station in Arizona to talk about Down syndrome research. Enjoy the update from Dr. Harpold at 17 minutes.
Here's to Collaboration!
Thank you to Jeremie Ballinger, Executive Director of the Down Syndrome Association of Greater St. Louis, who took some time from the activities at DSAIA to talk about the merger of LuMind Foundation and Research Down Syndrome. We appreciate the time Jeremie took to "welcome collaboration," especially as the DSAGSL was busy collecting numerous awards at the conference. We're so glad to have your support, DSAGSL!
LuMind Foundation and Research Down Syndrome Have Merged to Create One Organization: LuMind Research Down Syndrome Foundation
The LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome (RDS), worldwide leaders in advancing Down syndrome cognition research, together announce consolidation of the two organizations. The new foundation will pursue their shared mission more effectively and efficiently, and leverage the tremendous progress each has made to ignite Down syndrome cognition discoveries. Read more in our press release.
Karen Gaffney on the Importance of Research
Vibrant and inspirational self-advocate Karen Gaffney spoke at the October 2014 Funding Futures to benefit the LuMind Foundation. Karen spoke about the importance of Down syndrome cognition research and "the huge black cloud" that hangs over her about early onset Alzheimer's disease and loss of cognitive gains that every person with Down syndrome faces as they age.
We Have Big Plans for 2015!
Won't you join us? Ten years ago there was little research on Down syndrome cognitive development being conducted, now there are more promising lines of discovery than we can fund. The LuMind Foundation Board Chair, Ryan Hartman, has a message about why NOW is a critical time to capture the research momentum you've ignited with your donations. Read Ryan's words on our Plus15 Blog.
NIH Releases 2014 Down Syndrome Research Plan
We’re very pleased to announce that NIH has just released the updated document “Down Syndrome Directions,” the NIH Research Plan on Down Syndrome. The research plan will provide another great way to work with the DS community to further research efforts. Read more about the plan on our plus15 Blog.
The ROMP Video is Here!
What happens at a ROMP FOR RESEARCH? Find out in this colorful, fun-filled, camera-drone flying video. We especially enjoyed the cameo by Troy, one of our favorite ROMP participants.