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DS Guild of Greater Kansas City – 360 Support of Cognition Research
By Veronica Fratta The Down Syndrome Guild of Kansas City (DSG) has been one of LuMind Research Down Syndrome Foundation’s strongest supporters. Today, we’d like to shine a light on all the good work they are doing. Amy Allison is the Guild’s director of 13 years. When she arrived, many DSG programs were directed towards […]
Friday, May 29, 2015 12:03:14 PM

100 Holes of Golf: Are You Up for The Challenge?
Can we get 10 people in 10 cities, each playing 100 holes of golf? That’s 1000 holes of golf, each one funding Down syndrome cognition research. By Alan Gard My two-year-old son, Alijah, has Down syndrome, and the last two years I have done the Hundred Hole Hike to raise money for Ds causes. The Hundred […]
Wednesday, May 27, 2015 12:22:38 PM

Down Syndrome Cognition Research: THE Most Important Opportunity
by Sarah Wernikoff Sarah Wernikoff was honored with the Luminary Award at our inaugural recognition gala, the Sky’s the Limit. Sarah chaired the LuMind Foundation Board from 2012-2014 and served as a member of the board for seven years. She presented the following remarks on why LuMind Research Down Syndrome Foundation and Down syndrome cognition research are important to her. Thank […]
Friday, May 22, 2015 10:45:42 AM

My Giving Story: We Need Research AND Advocacy
 – Stephanie Hartman shared this story at our inaugural Sky’s the Limit Awards Gala where we honored Dr. Jamie Edgin, Dr. William Mobley, Sarah Wernikoff and Jim and Patty White. Thank you, Stephanie, for supporting LuMind RDS Foundation and for sharing your personal reasons for supporting Down syndrome cognition research.  By Stephanie Hartman Even from a young […]
Wednesday, May 13, 2015 3:22:27 PM

The Sky’s the Limit for Down Syndrome Research!
Almost 100 people enjoyed the events during our “Sky’s the Limit” Awards weekend – a VIP reception, a research presentation by Dr. Harpold, Dr. Mobley, and Dr. Edgin, and of course, the inaugural Awards Gala on Saturday night. Please enjoy our staff’s casual and candid photos of the Awards gala. We will have more photos and stories […]
Wednesday, May 06, 2015 12:03:31 PM

Recognizing the Pioneers in Down Syndrome Research – 2015 Awards Gala
We are so excited to be hosting our very first awards gala – The Sky’s the Limit – in Seattle on May 2, 2015. We selected the Sky’s the Limit theme to represent the hope we feel. Thanks to your support over these 11 years, research that was once too complex to even consider is now […]
Thursday, April 30, 2015 3:09:22 PM

Affiliate Profile: Thank You Buddy Walk of South Plainfield
By Veronica Fratta Michele Both is a busy mom of four beautiful children aged 15, 12, 9, and 6. Yet once a year, she finds the time to organize a walk that mobilizes 650 people to support individuals with Down syndrome. Michele’s second child, Kyle, was born with Down syndrome. That October, Michele and family attended […]
Tuesday, April 28, 2015 11:32:18 AM

Run for Research: Chicago Marathon
Lottery registration for the Oct. 11 Bank of America Chicago Marathon, one of the world’s premier running events, ends on Tuesday, April 21.  LuMind Research Down Syndrome has charity entries. More than 40,000 participants run from Grant Park, through the Loop, Old Town, Wrigleyville, Lincoln Park, through Little Italy, Chinatown, and Bronzeville, before ending up again […]
Friday, April 17, 2015 5:01:00 PM

Alexander’s Angels: Supporting Every Person in the World with Down Syndrome
By Veronica Fratta We hear so much about how far a mother will go to help her child, but how about a grandmother?  Well, Esther Gómez-Nieto organized a walk, started an art show, educated college students, started a foundation, and raised hundreds of thousands of dollars—all to support her grandson Alexander and others with Down […]
Monday, March 23, 2015 4:01:22 PM

First Lady Mary Pat Christie Lights the Way for Ds Cognition Research
Thank you New Jersey First Lady Mary Pat Christie for championing the “Light the Way” program! Twenty-nine states and territories to date will be participating in Mrs. Christie’s campaign by showing support for Down syndrome cognition research on March 21, 2015, World Down Syndrome Day. From Governor Christie’s office: First Lady Mary Pat Christie Spearheads “Light the […]
Friday, March 20, 2015 2:08:42 PM

Let’s Do This: Mobilizing the Cognition Research Army
By Maureen Wallace The funny thing is, I’ve always had this unexplainable foreboding that I would develop Alzheimer’s disease. I guess that’s not so funny, is it. The fear lurks in my mind, so much so that I visited a research facility once, thinking I’d be able to learn if I was “predisposed.” Turns out, […]
Thursday, March 19, 2015 12:01:57 PM

My Giving Story: A Foot in Two Worlds – Ds and AD
New developments in the relationship between Alzheimer’s Disease and Down Syndrome are truly exciting, particularly for those of us who have vested interests in both worlds.
Saturday, March 14, 2015 9:06:18 AM

Q&A With Dr. William Mobley
Did you attend our webinar in January and ask a question that wasn’t answered? Dr. William Mobley has the answers! Dr. Mobley from the University of California, San Diego’s Down Syndrome Center for Research and Treatment and Dr. Jamie Edgin from the University of Arizona’s Down Syndrome Research Group spoke at our webinar on January 29, […]
Friday, March 13, 2015 10:14:45 AM

LuMind Foundation and Research Down Syndrome Have Merged
LuMind Foundation and Research Down Syndrome have combined resources and programs. Together, we have contributed nearly $12 million to stimulate cognition research, resulting in the discovery of multiple drug targets and supporting the initiation of four clinical trials. The LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome […]
Tuesday, March 03, 2015 10:19:59 AM

Scientific Advisory Board Meeting – February 2015
The core of the LuMind Foundation’s successful research program is our Scientific Advisory Board (SAB), comprised of the brightest minds in research across disciplines and from around the world. Lead by our Chief Scientific Officer, Dr. Michael Harpold, the SAB met in person in mid-February to guide the organization’s mission to fund the most promising […]
Thursday, February 26, 2015 1:08:51 PM

Dr. Harpold at the NIH Alzheimer’s Disease Research Summit 2015
We appreciate Dr. Michael Harpold for being such a road warrior on behalf of the Down syndrome community. On February 9-10, 2015, Dr. Harpold, LuMind Foundation’s Chief Scientific Officer, attended the biennial NIH Alzheimer’s Disease Research Summit 2015, a major forum for the dynamic development of coordinated Alzheimer’s disease research efforts under the Congressionally-mandated National Alzheimer’s […]
Wednesday, February 18, 2015 5:12:15 PM

Glitter and Glue: NYT Bestselling Author Kelly Corrigan at Down Syndrome Research Fundraising Event
By Nicole Gibbard, Event Organizer, Glitter and Glue, Chicago, February 28, 2015 Last year on Linkedin, one of my favorite authors, Kelly Corrigan, posted a personal challenge to raise $1M for charity as part of her 2015 Glitter and Glue paperback book tour.  I knew immediately she was speaking to me and I couldn’t wait […]
Wednesday, February 04, 2015 5:24:16 PM

Reaffirming our Mission: Down Syndrome Cognition Research
“Neither rain nor snow nor gloom of night …” may belong to the Post Office, but our Board Members braved the cold, snow and ice to focus on our mission and growth measures so we can have an even greater impact on Down syndrome cognition research. On a very snowy Saturday, January 24, 2015, The LuMind […]
Friday, January 30, 2015 1:33:29 PM

Is Ds Research Advancing Alzheimer’s Disease Research – Or is it the Other Way Around?
How are Down syndrome and Alzheimer’s Disease connected? It is an interesting and surprising finding that every person with Down syndrome develops by age 40 the brain pathological changes of people with Alzheimer’s disease. Moreover, most people with Down syndrome in old age – i.e., beyond age 60 – show further cognitive decline. This is […]
Wednesday, January 21, 2015 4:25:01 PM

Dr. Harpold Quoted in Education Week Articles on Down Syndrome Research
LuMind Foundation’s Chief Scientific Officer, Dr. Michael Harpold, was quoted in an article by Education Week on the NIH Down Syndrome Research report. In the article, titled “NIH Resets Study Plans for Down Syndrome,” author Sarah Sparks summarizes the seven-year research plan, including discussing a greater focus on students in educational settings. Dr. Harpold is quoted on the […]
Thursday, January 15, 2015 2:44:02 PM

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