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Never Underestimate Your Influence
by Anne Tippett, LuMind RDS Vice President of Development Do you have plans for December 1, Giving Tuesday? Giving Tuesday is a national day of giving that follows Black Friday and Cyber Monday. You may already have a charity in mind to support, hopefully you’ll consider LuMind RDS. Did you know your friends and family […]
Monday, November 23, 2015 4:00:43 PM

NIH supports new studies to find Alzheimer’s biomarkers in Down syndrome
The National Institutes of Health announced a groundbreaking initiative to track dementia onset and the progress of Alzheimer’s disease in people with Down syndrome. The studies will be funded by the National Institute on Aging (NIA) and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), both part of NIH. “We […]
Thursday, November 19, 2015 11:21:55 AM

LuMind Research Down Syndrome Named an Official Charity Partner of the 2016 United Airlines NYC Half Set for Sunday, March 20, 2016
New York, November 17, 2015 — LuMind Research Down Syndrome Foundation was named an Official Charity Partner of the 2016 United Airlines NYC Half, it was announced today by Carolyn Cronin president and CEO of LuMind RDS. The race will take place on Sunday, March 20, 2016. “The opportunity to partner with the United Airlines […]
Tuesday, November 17, 2015 5:02:12 PM

DS-Connect®: Step-By-Step
By Veronica Fratta Launched in 2013, DS-Connect® is an online health registry for individuals with Down syndrome. The registry supports Down syndrome research by collecting data on medical conditions affecting people with Down syndrome and making that de-identified information available to scientists and the medical community. The registry also connects people with Down syndrome with […]
Monday, November 16, 2015 9:58:50 AM

By Alan Gard The year 1989 has gotten some attention of late. This is primarily due to it being the birth year of Taylor Swift, she of recent world domination.  She even paid homage to that year as the title to her most recent album, which also was the final step into her total transformation […]
Tuesday, November 10, 2015 10:35:51 AM

LuMind RDS Welcomes Three New Board Members
At our October 28, 2015 Board meeting, the LuMind RDS Board voted in three new members. Please join us in welcoming Virginia Bennett Flynn, Patrick Kannon, and Christopher Lis. Virginia Bennett Flynn joins us from Massachusetts, but brings an international perspective to her Board role thanks to her extensive resume of working abroad and with global firms. […]
Friday, October 30, 2015 3:39:23 PM

Danke Schon and Tschüss to Dr. Bob
Dr. Robert Schoen, former president of Research Down Syndrome and LuMind Research Down Syndrome director of event and donor engagement, has retired from the organization. We are so grateful for Bob’s help and advice during the merger transition and join the thousands of RDS supporters – especially the vibrant community of Runners – in thanking Bob […]
Monday, October 26, 2015 11:08:00 AM

LuMind RDS Runners Leyda and Chad Simon Profiled
Chad Simon is a student at Fort Hays State University – and a long-time runner for the LuMind RDS Runners program. Chad runs along along with his wife Leyda in support of their daughter Ashylnn who has Ds. Chad and Leyda were profiled in an article in the Fort Hays State University news outlining their […]
Friday, October 23, 2015 10:12:43 AM

Cognition Goes Global – LuMind RDS Joins Down Syndrome International
LuMind Research Down Syndrome Foundation is proud to announce we’ve joined Down Syndrome International (DSi) as an affiliate member. DSi is a global network of Down syndrome organizations representing 131 countries around the world. They’re aiming to channel the expertise and experience existing in many countries and use that knowledge to benefit other countries, especially […]
Wednesday, October 21, 2015 3:49:10 PM

Celebrating 10 Years of ROMP
Thank you to everyone who played, smiled, laughed and donated in celebration of 10 years of the ROMP on October 11 in NYC. We’ll be adding more pictures as we receive them and can’t wait to see the video of the event! If you couldn’t make it, but still want to show your appreciation of the great […]
Friday, October 16, 2015 12:11:00 PM

Warmth and Enthusiasm at the Alexander’s Angels Buddy Walk
We were so happy to represent cognition research at the 9th Annual Alexander’s Angels Buddy Walk on October 10, 2015 on Long Island. The sun was shining, kids were laughing, and a good time was had by all in celebration of Down syndrome Awareness Month. Our VP of Development, Anne Tippett, was on hand to […]
Tuesday, October 13, 2015 1:03:00 PM

Kate Dochelli Runs to LuMind RDS
We are happy to announce that Kate Dochelli has joined LuMind RDS to lead and grow the vibrant Runners program as well as coordinate special events for the organization. Kate has been a member of the RDS Runners program for several years and is poised to engage with runners since she is marathoner herself. “I […]
Wednesday, September 23, 2015 5:14:43 PM

Comments on Reports of a “New Down Syndrome Therapy”
By Dr. Michael Harpold Chief Scientific Officer, LuMind RDS Foundation Many of you have asked about a recent news piece and associated press release entitled “New Down syndrome Therapy Discovered.” Although this is not a research endeavor LuMind RDS is funding, the following perspective is provided which may be helpful in addressing some questions and further understanding […]
Monday, September 14, 2015 11:04:42 AM

Jersey Tough – 24-Hour Relay Run For Research
LuMind Research Down Syndrome thanks the 24-Hour Relay Run for Research organizers Lisa Arnoa and Matt MacDougall, and all the runners, walkers and sponsors who participated in this non-stop fundraiser held in Denville, New Jersey July 25-26, 2015. The Second Annual 24-Hour Relay Run for Research is a team event, in which each team member takes […]
Wednesday, August 26, 2015 11:49:27 AM

Pitching EDGY
By Alan Gard, Golf Warrior and Devoted Dad Around last Christmas time, I had the book EDGY Conversations: How Ordinary People Can Achieve Outrageous Success by Dan Waldschmidt, recommended to me by someone who had interacted with the author at a corporate event. The book was an entertaining and quick read and covers many of the […]
Friday, July 17, 2015 9:53:39 AM

Get Down Syndrome Represented on the Cover of Runner’s World
The amazing Lara Font, a LuMind RDS Board member, is in the running to be a featured on the cover of Runner’s World. The contest is looking to showcase inspiration, passion and athleticism and this mom of four checks all the boxes. Lara began running competitively after her fourth child Parker was born. Parker has Down […]
Thursday, July 16, 2015 1:57:29 PM

21st Century Cures Act Passes in US House – What It Means for Down Syndrome Research
By Dr. Michael Harpold, LuMind RDS Chief Scientific Officer The 21st Century Cures Act, originating and developed out of the US House Energy and Commerce Committee, has been working its way through to a vote in the US House of Representatives. LuMind RDS signed the letter of support organized by National Health Council, in conjunction with our […]
Wednesday, July 15, 2015 3:38:50 PM

A Declaration of Independence
Happy Independence Day! By Alan Gard This year I took the time to re-read the Declaration of Independence.  And as I was reading it, there were a few things that resonated with me as I prepare for my Hundred Hole Hike to raise money for LuMind Research Down Syndrome. While Alijah is not oppressed by […]
Friday, July 10, 2015 1:38:23 PM

What’s happening in Down syndrome research?
How do you keep up with the latest in Down syndrome research? We know you love Dr. Harpold and all the LuMind RDS-funded researchers who let you know about the advances in cognition research, but there’s a big world of discoveries out there. We’ve curated the latest scientifically-credible articles for you on our website. We’ll […]
Thursday, June 25, 2015 11:46:46 AM

What Do You Want to be When You Grow Up?
By Beth Gard Beth Gard is wife to Alan and mom to Gabe, Alijah, and Dalaney and leads Medical Outreach for the Down Syndrome Alliance of the Midlands. She is also Alan Gard’s caddie as he completes the Hundred Hole Hike to benefit LuMind RDS Foundation and Down syndrome cognition research. What do you want to be […]
Tuesday, June 23, 2015 12:21:47 PM

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