A blog demystifying Down syndrome cognition research

Want more? Access all the blog articles and topics on our Plus15 Blog.

LuMind Foundation's Plus15 » Blog
Kate Dochelli Runs to LuMind RDS
We are happy to announce that Kate Dochelli has joined LuMind RDS to lead and grow the vibrant Runners program as well as coordinate special events for the organization. Kate has been a member of the RDS Runners program for several years and is poised to engage with runners since she is marathoner herself. “I […]
Wednesday, September 23, 2015 5:14:43 PM

Comments on Reports of a “New Down Syndrome Therapy”
By Dr. Michael Harpold Chief Scientific Officer, LuMind RDS Foundation Many of you have asked about a recent news piece and associated press release entitled “New Down syndrome Therapy Discovered.” Although this is not a research endeavor LuMind RDS is funding, the following perspective is provided which may be helpful in addressing some questions and further understanding […]
Monday, September 14, 2015 11:04:42 AM

Jersey Tough – 24-Hour Relay Run For Research
LuMind Research Down Syndrome thanks the 24-Hour Relay Run for Research organizers Lisa Arnoa and Matt MacDougall, and all the runners, walkers and sponsors who participated in this non-stop fundraiser held in Denville, New Jersey July 25-26, 2015. The Second Annual 24-Hour Relay Run for Research is a team event, in which each team member takes […]
Wednesday, August 26, 2015 11:49:27 AM

Pitching EDGY
By Alan Gard, Golf Warrior and Devoted Dad Around last Christmas time, I had the book EDGY Conversations: How Ordinary People Can Achieve Outrageous Success by Dan Waldschmidt, recommended to me by someone who had interacted with the author at a corporate event. The book was an entertaining and quick read and covers many of the […]
Friday, July 17, 2015 9:53:39 AM

Get Down Syndrome Represented on the Cover of Runner’s World
The amazing Lara Font, a LuMind RDS Board member, is in the running to be a featured on the cover of Runner’s World. The contest is looking to showcase inspiration, passion and athleticism and this mom of four checks all the boxes. Lara began running competitively after her fourth child Parker was born. Parker has Down […]
Thursday, July 16, 2015 1:57:29 PM

21st Century Cures Act Passes in US House – What It Means for Down Syndrome Research
By Dr. Michael Harpold, LuMind RDS Chief Scientific Officer The 21st Century Cures Act, originating and developed out of the US House Energy and Commerce Committee, has been working its way through to a vote in the US House of Representatives. LuMind RDS signed the letter of support organized by National Health Council, in conjunction with our […]
Wednesday, July 15, 2015 3:38:50 PM

A Declaration of Independence
Happy Independence Day! By Alan Gard This year I took the time to re-read the Declaration of Independence.  And as I was reading it, there were a few things that resonated with me as I prepare for my Hundred Hole Hike to raise money for LuMind Research Down Syndrome. While Alijah is not oppressed by […]
Friday, July 10, 2015 1:38:23 PM

What’s happening in Down syndrome research?
How do you keep up with the latest in Down syndrome research? We know you love Dr. Harpold and all the LuMind RDS-funded researchers who let you know about the advances in cognition research, but there’s a big world of discoveries out there. We’ve curated the latest scientifically-credible articles for you on our website. We’ll […]
Thursday, June 25, 2015 11:46:46 AM

What Do You Want to be When You Grow Up?
By Beth Gard Beth Gard is wife to Alan and mom to Gabe, Alijah, and Dalaney and leads Medical Outreach for the Down Syndrome Alliance of the Midlands. She is also Alan Gard’s caddie as he completes the Hundred Hole Hike to benefit LuMind RDS Foundation and Down syndrome cognition research. What do you want to be […]
Tuesday, June 23, 2015 12:21:47 PM

2015 Awards Gala: Remembering Bright Minds
For our first Awards Gala we wanted to honor the best and brightest and cognition research today, but also pay tribute to great minds who are no longer with us. We awarded Dr. Jamie Edgin the Cox Rising Star Award. This award is named in honor of David R. Cox, M.D., Ph.D. a world-renowned geneticist and inaugural member […]
Tuesday, June 09, 2015 1:27:00 PM

Welcome back from the Inaugural T21 Research Society Conference
Bon voyage to all the Down syndrome researchers who attended the Inaugural T21 Research Society Conference in Paris, France. Our Chief Scientific Officer Dr. Michael Harpold attended the conference and participated in a general discussion about Science and Society that covered the following discussion points: The gap between science & society How can T21RS help to […]
Monday, June 08, 2015 12:40:19 PM

Not Ready To Make Nice
Hello! As a newcomer to this blog, let me introduce some of the basics about myself: My name is Alan Gard. My son Alijah who just turned 3 has Down syndrome.  I’m preparing for my third Hundred Hole Hike to raise money for a Ds related cause, and I am now focused on raising money […]
Monday, June 01, 2015 9:24:26 AM

DS Guild of Greater Kansas City – 360 Support of Cognition Research
By Veronica Fratta The Down Syndrome Guild of Kansas City (DSG) has been one of LuMind Research Down Syndrome Foundation’s strongest supporters. Today, we’d like to shine a light on all the good work they are doing. Amy Allison is the Guild’s director of 13 years. When she arrived, many DSG programs were directed towards […]
Friday, May 29, 2015 12:03:14 PM

100 Holes of Golf: Are You Up for The Challenge?
Can we get 10 people in 10 cities, each playing 100 holes of golf? That’s 1000 holes of golf, each one funding Down syndrome cognition research. By Alan Gard My two-year-old son, Alijah, has Down syndrome, and the last two years I have done the Hundred Hole Hike to raise money for Ds causes. The Hundred […]
Wednesday, May 27, 2015 12:22:38 PM

Down Syndrome Cognition Research: THE Most Important Opportunity
by Sarah Wernikoff Sarah Wernikoff was honored with the Luminary Award at our inaugural recognition gala, the Sky’s the Limit. Sarah chaired the LuMind Foundation Board from 2012-2014 and served as a member of the board for seven years. She presented the following remarks on why LuMind Research Down Syndrome Foundation and Down syndrome cognition research are important to her. Thank […]
Friday, May 22, 2015 10:45:42 AM

My Giving Story: We Need Research AND Advocacy
 – Stephanie Hartman shared this story at our inaugural Sky’s the Limit Awards Gala where we honored Dr. Jamie Edgin, Dr. William Mobley, Sarah Wernikoff and Jim and Patty White. Thank you, Stephanie, for supporting LuMind RDS Foundation and for sharing your personal reasons for supporting Down syndrome cognition research.  By Stephanie Hartman Even from a young […]
Wednesday, May 13, 2015 3:22:27 PM

The Sky’s the Limit for Down Syndrome Research!
Almost 100 people enjoyed the events during our “Sky’s the Limit” Awards weekend – a VIP reception, a research presentation by Dr. Harpold, Dr. Mobley, and Dr. Edgin, and of course, the inaugural Awards Gala on Saturday night. Please enjoy our staff’s casual and candid photos of the Awards gala. We will have more photos and stories […]
Wednesday, May 06, 2015 12:03:31 PM

Recognizing the Pioneers in Down Syndrome Research – 2015 Awards Gala
We are so excited to be hosting our very first awards gala – The Sky’s the Limit – in Seattle on May 2, 2015. We selected the Sky’s the Limit theme to represent the hope we feel. Thanks to your support over these 11 years, research that was once too complex to even consider is now […]
Thursday, April 30, 2015 3:09:22 PM

Affiliate Profile: Thank You Buddy Walk of South Plainfield
By Veronica Fratta Michele Both is a busy mom of four beautiful children aged 15, 12, 9, and 6. Yet once a year, she finds the time to organize a walk that mobilizes 650 people to support individuals with Down syndrome. Michele’s second child, Kyle, was born with Down syndrome. That October, Michele and family attended […]
Tuesday, April 28, 2015 11:32:18 AM

Run for Research: Chicago Marathon
Lottery registration for the Oct. 11 Bank of America Chicago Marathon, one of the world’s premier running events, ends on Tuesday, April 21.  LuMind Research Down Syndrome has charity entries. More than 40,000 participants run from Grant Park, through the Loop, Old Town, Wrigleyville, Lincoln Park, through Little Italy, Chinatown, and Bronzeville, before ending up again […]
Friday, April 17, 2015 5:01:00 PM

Access all the blog articles and topics on our Plus15 Blog.

Want the Ds cognition news delivered to your inbox? Sign up for our monthly e-newsletter.

Sign up here:


LuMind Research Down Syndrome Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177

© 2015 LuMind Foundation. All Rights Reserved.