Here's to Collaboration!
Thank you to Jeremie Ballinger, Executive Director of the Down Syndrome Association of Greater St. Louis, who took some time from the activities at DSAIA to talk about the merger of LuMind Foundation and Research Down Syndrome. We appreciate the time Jeremie took to "welcome collaboration," especially as the DSAGSL was busy collecting numerous awards at the conference. We're so glad to have your support, DSAGSL!
Thank you for supporting us on WDSD 2015!
So many of you took advantage of the generous 3:1 match on donations - THANK YOU! We loved seeing all the activity on social media - thank you to everyone who posted, blogged, tweeted or otherwise help to spread the word about the importance of cognition research.
LuMind Foundation and Research Down Syndrome Have Merged to Create One Organization: LuMind Research Down Syndrome Foundation
The LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation – DSRTF) and Research Down Syndrome (RDS), worldwide leaders in advancing Down syndrome cognition research, together announce consolidation of the two organizations. The new foundation will pursue their shared mission more effectively and efficiently, and leverage the tremendous progress each has made to ignite Down syndrome cognition discoveries. Read more in our press release.
Karen Gaffney on the Importance of Research
Vibrant and inspirational self-advocate Karen Gaffney spoke at the October 2014 Funding Futures to benefit the LuMind Foundation. Karen spoke about the importance of Down syndrome cognition research and "the huge black cloud" that hangs over her about early onset Alzheimer's disease and loss of cognitive gains that every person with Down syndrome faces as they age.
We Have Big Plans for 2015!
Won't you join us? Ten years ago there was little research on Down syndrome cognitive development being conducted, now there are more promising lines of discovery than we can fund. The LuMind Foundation Board Chair, Ryan Hartman, has a message about why NOW is a critical time to capture the research momentum you've ignited with your donations. Read Ryan's words on our Plus15 Blog.
NIH Releases 2014 Down Syndrome Research Plan
We’re very pleased to announce that NIH has just released the updated document “Down Syndrome Directions,” the NIH Research Plan on Down Syndrome. The research plan will provide another great way to work with the DS community to further research efforts. Read more about the plan on our plus15 Blog.
The ROMP Video is Here!
What happens at a ROMP FOR RESEARCH? Find out in this colorful, fun-filled, camera-drone flying video. We especially enjoyed the cameo by Troy, one of our favorite ROMP participants.
You Moved the Needle!
You pushed the needle on research! We reached our goal of 2390 and doubled our $100/person donation, by adding at least 125 names to the DS-Connect® registry. In the end, 226 people joined DS-Connect® during the month of October, earning LuMind Foundation $45,200 for research. Better yet - the registry tipped 2500 just after the month closed. Keep watch on the DS-Connect® website to see the gauge move even more.
Thank you to everyone who helped by joining the registry and spreading the word. Read our deepest thanks on our plus15 blog post "DS-Connect® Challenge a Huge Success."
For details on the Challenge, read a description on our website or visit the registry to sign up today at DS-Connect®.
Keep the needle moving!
Your Donations at Work: The 2014-2015 LuMind Research Grants are Announced
We've worked together all year for this moment! The Research grants are here!
Thank you to all of our wonderful supporters who made advances in Down syndrome research a reality. Thank you to the members of our Scientific Advisory Board for reviewing all the proposals and making those tough decisions.
Read more about the areas of research and the wonderful opportunities the programs hold for people of all ages with Down syndrome. Learn more by visiting our Research hub, reading the full press release, or browse a graphic outlining how the results from our funded researchers are flowing through the research pipeline. Great progress - all thanks to you!